Health, Healthy Food

Invisible Illnesses Unveiled – Celiac Disease

Celiac Disease is an autoimmune disorder in which gluten ingestion can cause damage to the small intestine and other long-term health issues. 

Theresa Lanno is a hairstylist and my business partner at Bombshells Barbershop & Glam Lounge in Rockledge, Florida. We busted our asses to open our salon. Stress can do a lot of things to our bodies. Theresa was rapidly losing weight without trying. She was coughing up blood and having stomach issues. The first doctor she saw gave her ulcer medication and chalked it up to stress. Can you imagine if she just took those pills and did not push for further tests? She would be damaging her body for many years to come and suffer from more health issues. Many autoimmune diseases are a dominos effect on your health. 

 Long Term Health Effects

Celiac disease can develop at any age after people start eating foods or medicines that contain gluten. Left untreated, celiac disease can lead to additional serious health problems. These include the development of other autoimmune disorders like Type I diabetes and multiple sclerosis (MS), dermatitis herpetiformis (an itchy skin rash), anemia, osteoporosis, infertility and miscarriage, neurological conditions like epilepsy and migraines, short stature, and intestinal cancers. 
*Read more here.

 

Theresa also had a vitamin D deficiency, which can cause brain fog, bone pain, fatigue, depression and muscle weakness. Deficiencies are common with celiac disease. Gluten is a protein found in wheat and 1 in 100 people overreact to this particular protein, which damages the villi in their small intestines and causes poor absorption of food. Malnourishment can eventually lead to infertility, miscarriage, bone density loss, neurological diseases and certain types of cancer. 

Fortunately, the cure for celiac disease is to completely cut gluten out of your diet. My goal in unveiling invisible illnesses is to push others to be their own advocate and to get answers and not just accept the first guess a doctor quickly throws at you before their next patient. We want answers and and test as well asnproper treatments and not bandages or pills to mask our symptoms. 

Even if you are not Celiac, gluten sensitivities can cause similar issues minus the intestinal damage. Gluten has been know as an inflammatory food. You can read more here about research and references. 


*Photos by Misti Blu





At what age did you discover symptoms and how long did it take to get an official diagnosis?

Theresa: I found out I have Celiac disease in April. I’ve always had stomach aches and low energy.  I never thought anything of it until the past two years when my life got miserable. I couldn’t eat or drink with out feeling sick. I would get migraines, nausea, dizziness,  heartburn, brain fog and joint pain, which ruled my life. 

How do you feel about the healthcare system? 

Theresa: The healthcare system is very flawed. I went through tests for 2 years before getting a diagnosis. Every doctor said I was young and healthy with low vitamin levels & stress. I lost 20 pounds in 2 months. I knew it was something else and not just stress. Thankfully, after many different doctors, I went to a walk in clinic begging for answers. They finally sent me to a gastroenterologist. Even after going through all my tests it took over a month to get a diagnosis. Celiac disease isn’t very common and many doctors still don’t have knowledge about this disease, which is so frustrating. 

Do people have a hard time understanding your illness?

Theresa: Yes!  The worst thing about this disease is that the only way to feel better is by sticking to a strict gluten free diet. Cross contamination is a nightmare, which makes eating out almost impossible. Also, people use gluten free as a fad diet which makes restaurants not take it seriously. I get asked if my body’s intolerance to gluten is “a choice or an allergy.” Why anyone would make this choice for no reason is beyond me. Gluten free is not a fad, actually gluten free breads and sweets usually have more sugar and calories than “regular” things do! 

Do you have a message for people in your shoes who are struggling with this illness?

Theresa: It gets easier! The cravings are part of the disease. Be strong and don’t give into cravings. Celiac disease is strongly linked to cancer, MS, neuropathy, and diabetes. It’s no joke and there are so many people out there who feel the same!

What do you miss the most from before your diagnosis?

Theresa: I miss having a normal dinner with my friends and family.  I was such a foodie! I still am but it’s just harder now.  I don’t want to be the person who asks the waitress a million questions or has to fear getting sick from a chef’s negligence or server error.  But, most of all I miss real New Haven style PIZZA! 
What is your new favorite (gluten free) dish?

Theresa:  I have learned to make almost everything I loved before in a gluten free way. My favorite thing has been chicken parmesan! Barrilla makes the best GF pasta! I love Boars Heads deli meats for lunch and Goodie Girl Cookies are the shit for snacks! Sweets are my weak spot, and the Melting Pot has the best GF spread you will ever see! 

How have you changed or felt since your diet change? 

Theresa: All in all, the sucky diet is so worth the change. I feel so much better. I am down 20 lbs all together.  I still have days where my energy sucks and everything hurts but that is part of the autoimmune thing. No more crippling migraines or joint pain. It sucks sometimes but it could always be worse!

Health, Healthy Food

A Letter To The Restaurant Industry – From A “Picky” Eater

More than 50 million Americans have food allergies. Is it outrageous to suggest that restaurants should train their staff on food allergies and which menu items may contain certain ingredients? This job is not just about refilling someone’s water or placing an order. Having standards for your employees to know what is in the salad on the menu should be a given but unfortunately, most of the time the answer is “I don’t THINK there is dairy in it.” Why not train your staff to know what is in the food they serve? 

When a customer shits their brains out, gets a debilitating migraine, crashes for 4 solid hours and wakes up to the room spinning, breaks out in hives or whatever other awful things may happen after you collect their tip and they head home, they will never come to your restaurant again. They will associate their post meal reaction with your food and consider it poison. You are now officially blacklisted on one customer’s dining list. Maybe it is just one, no big deal! But I promise this number will grow.

We are not a bunch of picky asshole snobs. Guess what? We can actually see your judgemental face and hear your shit talking in the kitchen. Let me guess… “People who have restrictions should not go out to eat.”  Go fuck yourself! Are you seriously telling me that I have to forgo dinner with friends or the occasional date night or even the last minute takeout order after a long day because you can’t get your shit together? Welcome to the new age, buddy. People have allergies. It is not always a fad diet craze. When someone says no butter, for example, and you bring them their dish cooked in butter anyway, just realize that you could be seriously hurting that person. They may have to call into work the next day or spend the evening watching flashing lights as the room spins while day dreaming about drilling a hole in their skull to release pressure. 


It is your job. Take people’s requests seriously or change your job position to the dish pit or try retail if you can’t be open minded to the fact that allergies and food sensitivities exist. You are in the wrong industry if you are going to be an asshole about a food modification for someone’s dietary needs. 

Also, latex gloves. If you still carry latex at your restaurant, you should know that hospitals have banned latex years ago and you can find information here to educate yourself and staff on that. Latex is also a common allergy. If hospitals no longer use it, maybe it is time you consider switching. 

Perhaps you want to gain a few more customers? Make a small side menu for gluten free or dairy free items so that your food allergy customers can have an option besides a side of lettuce. They will tell all their friends and possibly specifically come to your restaurant because they feel like they are not being treated like garbage and will now keep you on the rotation. 


Thank you for taking the time to read this and I hope that you will think about not discriminating your next customer who has “annoying” special requests. Treating customers with great hospitality is your job and I hope the tips flow even better now that you are a little more informed on how to treat people and that for some people, dairy or wheat may not close up their throat but could make them feel like they got hit by a semi truck while being forced to trip on shrooms. 
*Celiac disease is an autoimmune disease where gluten damages the small intestines. For others, gluten may not be an allergy or have as severe reactions as Celiacs but can cause an autoimmune response as it is considered an inflammatory food. For others, dairy may not be a lactose intolerant issue but an actual allergy that can cause a number of issues. For me, it causes tachycardia, vertigo, nausea, joint pain, fatigue, brain fog and sometimes other cardiac issues. 

Health

Day 5 Postoperative Pacemaker Update 

The past couple of days have been rough.  I have had sugar the last two days when I felt worse so I am hoping eliminating sugar again will help. I usually don’t have sugar in my diet but caved and had some dairy free Ben & Jerry’s almond ice cream. Basically, I have been having PACs, which feel like extra heart beats and bouts of Inappropriate Sinus Tachycardia. I have had these issues prior to the pacemaker that I just got on June 8th (2017) but was unable to take medication due to chronic Bradycardia, a slow heart rate. Now that I have the pacemaker as a safety net, I am able to take medication to help with the other issues. At this point, I have to wait 6 weeks to let the pacemaker fully heal and the meds to kick in and then we can re-evaluate the situation and discuss a possible Cardiac Ablation, which would be my 5th. I would then be 100% paced. I am trying to be positive and hope that avoiding sugar will help calm things down and that my heart is just angry and still needs to heal and adjust. In these last two days I have had PACs every single minute, sometimes more, sometimes less and about 5-10 episodes of Inappropriate Sinus Tachycardia (IST) each day. The IST will kick in randomly, often when I lie down from sitting up. My heart rate goes from 60s to 140s in seconds and my chest feels tight and constricted while my lips get cold and tingle or go numb. It is VERY uncomfortable and annoying, to say the least. The PACs sometimes will feel so strong that they jolt me out of bed. 

 I saw the doctor today and am still paced in the 80 percentile and they were surprised to see how often it kicked in. When my heart rate was higher from walking or with activity, it would have dropped and I could have passed out had the pace maker not been there. That is called Neurocardiogenic Syncope, which was confirmed in a Tilt Table Test I had a few weeks back. I am suffering from Dysautonomia but have not found the right doctor to determine why. I am currently trying to find a good rheumatologist to look into a proper diagnosis. Most signs point to Lupus (SLE) but nothing is set in stone. I definitely can tell how beneficial this pacemaker is and a life changer at that, I just really need to get the the bottom of what is causing my body to suffer. 

I guess I just get worried because I also have had open heart surgery in 2011 for severe Aortic Insufficiency. I had my valve repaired and currently all 4 valves have mild insufficiency. I also have thickening on my aortic valve and a thickened heart muscle with slight left ventricular enlargement. With all of this and an undiagnosed auto immune disease, I sometimes have a hard time keeping my chin up. I also have recently discovered that I have multiple complex cysts on my thyroid, which will need to be biopsied for cancer. 

Never take your health for granted. It is really tough being patient and waiting AND WAITING for answers. In the mean time, I am home in bed and away from my salon. I would love to be back to work and travel and run around and feel free again. I am currently trying to get disability so that I can ensure medical coverage (since there will likely be billions of dollars in cuts for Medicaid) and qualify to go to the Mayo Clinic so that I can get the proper care and treatment that I have needed for a decade or so.

I think that is all for now. Rubix cube still being solved. To be continued….

Health, Healthy Food

Nutrition In Healthcare 

Why do hospitals have prison grade nutrition for patients? Think about it. You are sick and vulnerable and trying to get healthy and they load you up with sugar, salts, preservatives and basically nothing of nutritional value. 


I am in the hospital today and have a dairy allergy and as usual get a tray full of dairy products. Sorry to be a pain, but most dairy gives me debilitating migraines with aura and a comatose crash for 3 hours. My body hates meat and makes my digestive system shut down. Sugar makes me sick and crash very hard and I already tend to run high on glucose levels. And coffee? I am here for tachycardia and arrhythmias so why would that even be a good idea? I also try to avoid gluten because it does not follow an anti inflammatory diet but I can’t imagine this hospital having those options. To most, I sound like a picky bitch. I have an autoimmune disease. I will have a flare up, tachycardia, migraines and nausea and joint pain. 

None of the food provided is nutritional and it is heartbreaking that sick people are not fed anything fresh, just boxed, frozen or canned garbage. I was asked if I wanted red jello for desert. How about fresh fruit? 

In all of the money made in healthcare, no one has ever decided to stand up and ask why we feed patients garbage? It is not even really a financial thing. I have mastered eating healthy on a budge and don’t spend any more than I would eating meat and dairy. It is this country’s lifestyle. We accept convenience over anything else. We are set in our ways. Everything they have told us must be true. 

Health

CBD Oil: Who, When, Where, Why, How?

Who?

Anyone can try CBD oil. Even kids and pets! CBD oil is safe and has been used medicinally for decades. CBD provides the medical benefits of the marijuana plant without the psychoactive effects and high produced by THC. 

Here is an example of a case study of a young girl with PTSD from sexual abuse: Pediatric Anxiety And Insomnia

CBD can be used for PTSD, insomnia, anxiety, menstrual pain, migraines, nausea, inflammation, IBS, Chron’s, autoimmune disease, arthritis, fibromyalgia, and much more. It is my go to for all of my ailments. 

What?

Cannabidiol, also known as CBD,  is a cannabinoid in cannabis. CBD makes up 40% of the plant extract. It is the second most medically beneficial cannabinoid, after THC. CBD can actually counteract the psychoactive effects of THC. 

When?

What I love about CBD is that I feel like I am in control of my symptoms instead of my symptoms controlling me. Most medication are taken every 6-8 hours, have side effects, can be addictive, cause withdrawals or long term effects such as damage to your liver. With CBD I can take it whenever and as needed. For example, the other day was very rough for me. I had a splitting headache, intense nausea, felt like I had just fallen from a three story building and increased heart rate. I felt aweful. I had doses every few hours or so and made it theough the day. Some doses even back to back. You could NEVER do that with pain medication or most medications. Then, I have days that are not so bad and might just skip doses all day and have one dose in the evening. 

Where?

CBD is legal in all 50 states as long as it meets the requirement of containing no more than 0.3% THC.  

Follow Blu Dream Health Collective on Facebook for more information or subscribe to this blog for updates and how to purchase CBD oil. 

Why?

There is a High Times article on 10 Little-Known Uses For CBD states that CBD can curb nicotine addiction and also help with acne. CBD is a huge anti inflammatory! Washington Post has plenty of doctors stating the anti-cancer properties and powerful positive effects for epileptic patients. Cannabis can suppress a hyperactive immune system and lower inflammation, which are two important concerns in Autoimmune Diseases.

CBD is safer than aspirin. There are overwhelming studies that prove just that. Medical cannabis has never killed a single patient. 

How?

CBD can be vaped, ingested transdermally, sublingual or in edibles. There are capsules, creams, salves and so on. I strongly suggest that you do your research and get the best product available. I only use Fountain of Health CBD because it is Colorado grown, non-GMO, vegetarian, alcohol-free and coconut oil base. Many companies do not even list their ingredients. This is also the highest strength for the best price available on the market. I carry the 1/2oz size in my shop and online store [link available soon] and it is 1,000mgs. You only need 2-5 small droplets under your tongue (sublingual) and it takes effect within minutes. 

Health

America Hates Me

Soon, the president of the Divided States of America will be cutting almost a trillion dollars for Medicaid cuts. As I often hear about the complaint for our tax dollars being spent on helping people like me, I never hear any disgruntled comments about the rest of our federal tax spending. We are just shuffling money from one area to another, from healthcare to Military and Defense. And state taxes? How dare we pay for those roads that we never drive on or the schools that our children don’t go to? America is not free, is it? 


Guys, only 28% of our taxes go towards healthcare. No one bitches about where the other 62% goes. Why is that? Do we need to educate ourselves more?


We are very privileged and I am grateful that I have the opportunity to bitch about getting the wrong Starbucks order, don’t get me wrong. I know it could be worse. However, I know it could be better. 


Almost 60 countries Have Universal Healthcare and some have mandated this since the early 1900s. Virtually all of Europe, included. The United States refuses to get on board. We can’t get it right in 4-8 years. It takes time… flipping from red to blue, hot to cold every decade is a disaster when we can look at several dozens other countries that have been doing it for decades. And no, don’t tell me I need to leave my country. My point is that there are answers out there but we have no humility and are drowning in pride and so divided that we would rather turn one half of our own country into a third world status than to pay a couple bucks a week in taxes for healthcare. 

Oh, but we will gladly pay it for military. Just not for the environment though. Seriously, all this is, is taking a budget and moving it somewhere else and that is screwing over your neighbor. New York was known as the melting pot. Now we just want corn dogs and apple pie.


Here in America, we feel that we work hard and must earn our right to be medically treated, granted we have a trust fund and come from wealth or were gifted with healthy DNA. Well, guess what? I work my ass off. I have never only had just one job. I do not come from a wealthy family and I was born with a rare disease. I have even gone to work in severe debilitating pain or irregular heart rhythms and just smiled and pulled through because I have a family to feed and a roof to keep over our heads. I have gone to work instead of the ER because I needed the money. I sometimes would spend days recovering from this… Shutting down my phone and crawling into bed, ordering pizza for the kids and hoping that I wake up the next day. Everytime I would get ahead I would get knocked back down and have to start over, scraping by. 

If I had my health, I would be rich from how damn hard I work and my infinite ambition. I don’t qualify for health insurance and I usually don’t qualify for Medicaid. Seldomly I get access to Medicaid and get the luxury of medical coverage for about 6 months but it is never enough time. 

I am what America hates. Your tax dollars paid for my open heart surgery. I digust you. This year, you win. Your votes will take away my coverage. And when that happens, I hope that you think about my children and the mother that you will take away from them so that you can afford a sweet new car with heated leather seats and Bluetooth and more military whatever. 


I have had some very close calls earlier this year and was often dismissed because I looked healthy. I have spent 32 years of my life looking for answers on my own while being medically neglected, year after year. Even recently, I had my Tilt Table Test and wore my usual light makeup and rosy blush. It is my daily routine. If I don’t cover my fatigued eyes and pale skin then I will be asked if I am sick or tired all day long. The nurse said I looked great and that likely this test would be a breeze for me. “She still has color,” he said seconds before my blood pressure bottomed out and my heart rate plummeted and I felt nauseous and horrible, to say the least. Maybe it’s Maybelline, because suddenly I was head down and being pumped with fluids. Shorty after, I went into hypoperfusion. I was stabilized quickly but despite how horrible I felt, I was relieved to have it all on paper and proof! Each and every ER visit, ambulance ride and hospital stay, dozens in The beginning of the year, my symptoms were dismissed as anxiety and I was prescribed Xanax and Valium and sent home to die because our healthcare is capitalism at it’s finest. It is corupt and unfair because we built it this way and refuse to do anything about it. We are blind. Wake up! For most, they are not poor enough for assisted coverage but not comfortable enough to swing the extra bill for insurance on their own. It is a lose-lose situation. Maybe heart attack statistics would go down if we weren’t stressing about how to afford a doctors visit! 

Despite my 2011 open heart surgery scar and four cardiac ablations, I still was not taken seriously. Hypoperfusion, or Circulatory Shock,  was diagnosed by my neurologist after my clear brain MRI and EEG of my brain waves rules out seizures and any neurological disorders, as well as my recent positive Tilt Table Test, pointing back to cardiac. I went through so many years of tests and no answers but refused to believe that this was anxiety. I was the happiest I had ever been. Finally some progress but time is running out until coverage will end. Life feels like quicksand. 




At one point, I was diagnosed with Acid Reflux, which I do not have and was given medication for that. I was diagnosed with Anxiety and Panic Disorder and given drugs for that. I do not have anxiety. I refuse to take those drugs. Before ruling out seizures, I had debilitating migraines with auras and was given seizure medication. Turns out that all I had to do was cut out preservatives and dairy and my migraines went away. I can’t help but wonder how many people are sent home drugged up to die with a misdiagnosis. How many “young and healthy” looking women were sent home with a new drug dependency while they really just had a deficiency that could have been managed? 



I have children, a business or two, a fiancé and I work very hard every chance I get, when my body allows it. Just because I look fine, does not mean that I don’t feel like shit and have chronic debilitating symptoms. I would be devastated to give up this fight and be home in bed all day, every day. Sometimes I feel like I should be but I have some much to live for and want to see as much of the world as possible,  even if each step hurts and I have to stop often. I will get back up and keep trekking. I am not giving up. 


Fortunately, my patience fizzled and I became an advocate for myself and finally made progress in a diagnosis to get proper management and treatment. My next step is a pacemaker on June 8th but there still needs to be an answer as to what the underlying issue could be. Currently, I am waiting on results for Elhers Danlos Syndrome and Marfan. I recently requested ANA blood work and tested positive, meaning I have one of 120 autoimmune diseases. 


My goal is to help raise awareness to doctors and medical staff about rare diseases and that when you hear hooves, sometimes it could be a zebra. I want to inspire others to get healthy and educate themselves on nutrition and what our bodies need to thrive and learn how to not walk away from doctors without answers. 


I hope that I can still fight this battle or open someone’s eyes to how wrong this government is. I just want to live. I am not ready to go. Please consider people like me before you strip what is left of our medical coverage. Please think abouty soon to be husband and my three children before you ban me from healthcare equality. I am never going to give up but I may die trying. 

If you still feel like reading, I urge you to read Marie Claire’s publication on women’s healthcare. 

Health

What is normal?

Throughout my entire life, I have been living with chronic ailments. I remember being in  grade school screaming in pain from stomach issues. 


I remember when I was 7 years old, running around and my heart felt like it a hummingbird and I would get dizzy. The adults said that it was normal to have your heart rate increase when you run around. My softball coach in 4th grade would tell me to keep going. What they did not know is that my heart was in the 250 beats per minute range. When I was 15, the school nurse finally caught on. Supraventricular Tachycardia. They said I would outgrow it but it got worse and more frequent. It would happen 20 times a day. It was exhausting. But, this was my normal. 


I have always suffered from migraines, chronic pain, depression and fatigue. Every day I had a complaint and after years of being told I was just a hypochondriac, I stopped bitching about it. This was my normal. Normal was insomnia. Normal was waking up at 4am every morning in pain. Normal hurts. I’m normal. Suck it up, Misti! 

I discovered CBD Oil after a recent two month long streak in and out of ambulance rides, ERs and hospital admissions. “Everything is fine”, they said. “This is anxiety”, they laughed. I never felt worse and I thought my life was coming to an end. I went back to the hospitals I had been to, down to the the medical records department and got copies of every single record from the last two months. No, I was not having anxiety attacks. My neutrophils were dangerously low, lymphocytes high, my bun/creatinine was very elevated… to name a few. My 30 day heart rhythm monitor was a scary mess. The nurses and doctor mocked me out the door, dismissing my concerns. “Everything is normal.” Needless to say, my third electrophysiologist is the one. Third one is a charm, I guess. Everything was not normal. My body was giving up on me. I was withering away and living in fear of each day being my last day on Earth. I have three amazing children and the love of my life by my side to fight for. 


*Photo by Arlene Jacobs

After countless hours of research and second and third opinions, I demanded to get my ANA tested, which determines if you have an autoimmune disease. Though, they thought it was excessive and unnecessary, they placed the lab orders anyway. It was positive. 


Had I known this 15 years ago, before 4 cardiac ablations, one open heart surgery, preterm pregnancies, endometrial ablation, hysterectomy consults, years of self medicating with marijuana and wine, chronic episodes of depression, decades of minimal sleep to the point where I had sleep paralysis, endless pain and so on…. I could have gotten the right treatment and care and changed my diet and learned how to manage my health conditions. 



I should not be here. If I listened to my doctors and did not put up a fight, I could be dead. If I did not take aspirin each time I began heart attack symptoms, I may have not made it. I was having vasospasms, spasms of the arteries and vascular system, which was constricting blood flow to my heart and extremities. I was going into circulatory shock from sinus node dysfunction. And to think, they suggested Xanax and sent me out the door!

I have not been back to the ER in a month, since my last hospital admission, which lasted 5 days of no answers. I imagine it is a number of reasons: new heart medications, CBD oil, bedside essential oil diffuser, removing sugar and preservatives from my diet, finding  out my allergies and triggers. CBD is a huge anti-inflammatory and helps with pain, nauseous, spasms, and sleep disorders, which are a few of my medical issues. I sleep so much better! I can keep my heart rate down and blood pressure lowered and stay calm and relaxed. My menstrual cycle is no big deal now. Leg cramps and pain throughout my body is now managed and I am in much better spirits! CBD oil is such an important alternative to the slew of pharmaceutical drugs that have been pushed my way. 

Every day is a new day. I take each day at a time, treat my body right and eat healthy. I still have a lot of pain and now need a pacemaker but at least I am getting answer. I even got genetic testing for Elhers Danlos Syndrome which is also something I pushed during my endless research since I fit the criteria very well. 

Doctors look and me and say I look great. I look healthy. I look fine. 

I cannot stress enough how important it is to be your own advocate and educate yourself. Put up a fight! Take care of your body.