This photo was taken 2 weeks after I had a conization, a cone-shaped piece of tissue, removed from the cervix. Before that procedure, I had 5 biopsies on my cervix showing precancerous dysplasia CIN3.
A week before this photo was taken, I was told I had cervical cancer. I had micro invasions in the margins where my cone biopsy was taken. Sometimes this procedure removes the bad cells and you are done. However, occasionally the margins are still positive and further treatment is required.
When I walked into the office, having fevers and recovering from the procedure, I came in to follow up and get answers from the pathology. I sat down in her office, distracted by the vibrant decor… black, white and silver glam office, reminding me of a salon or just a really girly office. My nervous mind wandering. What should I do for the rest of the day? Where should I get lunch?
“You have cancer. The margins are positive and this all happened so fast, meaning that it is super aggressive. The area of the micro invasions are up closer to your uterus and blood vessels so I am also worried about it spreading. You will need to see an oncologist for a hysterectomy and possibly further treatment.”
I steered my gaze from the sparking decor and looked her in the eyes, eyes of concern and dread for giving bad news to me every time I see her. My thoughts are whirling as I think about how this can’t possibly be real. My vision blurs as tears welt up in disbelief and fear. I have three kids and an amazing husband that I adore. I have a compromised heart that can’t handle much and still struggle to get my health under control… How can I go through this?
The appointment felt like a break up as I got passed along to a male doctor I have never met, an hour away after finally trusting this doctor and an appointment a couple weeks later, which felt like eternity.
Just before this photo was taken, my husband and I got bikes to ride on the beach. I was feeling great and it was beautiful. I still was processing the news but made the decision to remain calm and patient. We were on a trip in Miami South Beach. After riding the bikes for only a few minutes, I got dizzy and clammy. “Sorry to cut this short, babe, but I don’t feel well and I want to go back to the room.”
My sweet, understanding husband got the bikes returned and we went to our room on the 10th floor with a gorgeous view. A few hours later, I started hemorrhaging. I ended up in the Miami ER for 7 hours, finally being discharged so that we could return home and see my doctor.
Now, as I write this, I am almost two weeks post op from my hysterectomy and my pathology was cleared for no further treatment and I am cancer free. Though I did have to go back to the hospital for two broad spectrum IV antibiotics for two days, I am doing well.
I would not wish this roller coaster on anyone but I am so grateful it wasn’t worse. It could have been worse. I could be still fighting. Before I came in for my one week hysterectomy post op appointment, I said to myself, “If there is more, I am done. I will live my life happy and will not do any further treatment or put my heart through anything more.” I was so lucky. I am so lucky and grateful.
I will say, as someone who suffered from severe endometriosis most of my life, close to two decades, I wish I had a hysterectomy sooner. I put it off for so long, worried about everyone’s opinions and fears. I am excited to start this new chapter of my life of no suffering. I want to buy white pants to celebrate! Two weeks of every month will be mine again, not lost in bed with migraines, severe pain, chest tightness, fevers, fatigue, nausea, IBS and depression.
If you have severe endometriosis, a hysterectomy is nothing but just one last period cramp. You’ll do fine!
4 thoughts on “Invisible Illnesses Unveiled- Cervical Cancer and Endometriosis”
11 years out from my hysto, pre cancerous cells and the hell of endo. Add EDS on to it all… and yeah the hysto was my favorite surgery ever. It actually worked! No more pain, no more loss of blood, I once had a doctor tell me that the amount of blood I loose is less than a 1/2 cup. I laughed with tears running down my face, and said sure if you only count the spotting i have on and off all month. Enjoy your hysto! PS my sex life got better too!
Awesome! I have EDS too. That makes everything rough, for sure. I am so excited for this new chapter!!! Omg!
I like your website MISTI, keep this up…small book next, you are very informative and this intel is very important.