Health

Ehlers Danlos Syndrome and Hearing Loss

Ehlers-Danlos Syndrome can cause a defect in the sound conducting mechanism of the middle ear, and which may result in hearing loss. My “good” ear has been crackling and feeling less good. I see an ENT regularly and have shown a steady pattern of loss in both ears, predominantly my right ear.

What seemed like a normal follow up to see why the tinnitus and crackling has worsened in my better ear, ended up in receiving some surprising news.

My last hearing test was just 6 months ago and it is evident that there has been progressive loss. My doctor said she would not usually advise hearing aids at this level yet but considering EDS and the obvious progression, her opinion is to start now before it gets worse.

Today is one of those days where I feel just completely defeated by my body. The idea of hearing aids at my age…. but I will rock them. My purpose here is to help others like me to feel beautiful, strong and supported. So, I am taking another hit for the team.

Anyone else out there have hearing aids?

mental health

What Anxiety and Depression Feels Like

Anxiety is not being nervous over a big presentation at work. It’s not the butterflies in your stomach while you stress over what to wear. It’s not the feeling of having a hard time because you have too much on your plate.

Anxiety is a wave that towers over you, consuming your entire body. You tremble and shiver, your throat closes up and your palms sweat. Your heart races like a hummingbird. Many times it can be for no reason at all. It is out of your control. Your body is temporarily not yours. A state of panic sets in and you feel like you might die. Anxiety is neurotransmitters out of balance. It is the feeling of melting into quicksand. It’s feeling as if something terrible is about to happen. It feels as if you are about to implode.

Depression is not feeling bummed because you had a rough day. It’s not feeling sad because things didn’t go your right today. Depression is not being sad about that mean comment someone made towards you. It is not something that you can just suck up and get over. It is not cured by a simple attitude adjustment. It is a thick heavy blanket that drowns you. Sometimes it is devastatingly painful. Sometimes it is pure numbness, and other times it is the feeling of doom buried deep within you. It is like you are grieving the biggest loss you have ever felt. Even when the sun is shining and the sky is blue, this feeling can sink you. Oftentimes there is not even a reason. It’s like you’re missing a limb. Something is missing but you can’t place what it is.

Anxiety and depression does not make you weak, nor does it mean that you are weak. Mental health disorders are greatly misunderstood by a majority of society. The stigma must end and something needs to change. Generations are losing many to this epidemic. Addiction grows from mental health disorders and the need to self-medicate to escape from suffering.

My Amazon Recommendations

Little ways to make a small difference:

  • Listen when someone needs to talk
  • Don’t tell them it will “get better” or to “suck it up,” as these are dismissive comments that are not helpful
  • If you don’t understand, then try to empathize
  • Toxic positivity can be harmful. Pretending to be okay is not productive or healing.

National Suicide Prevention Lifeline

Call 1-800-273-8255

Available 24 hours everyday

Health

Grieving Your Past Life and Accepting the New

I remember the days when I was a social butterfly. I was building my empire, helping the community and I knew everyone. I truly thought I had so many friends. It was not until my health was at my worst when I realized that I actually only had a handful of real friends: Those who visited when I had open heart surgery… Those who came by when I got my pacemaker…. Those who checked in on me… Those who were there during the low times.

Someone healthy once said to me that people get sick because they want attention. That could not be further from the truth. You do not get attention when you are sick, you get dropped and become a has-been. You are forgotten and realize most of your friends were only drinking buddies or you were their wingman. Out of sight, out of mind. People move on from you and gravitate toward a replacement. I had a career that was flourishing. I was traveling several times per year, all expenses paid for. I was challenged, inspired, thriving and growing. But my health always catches up. It always knocks me down, no matter how high I climbed.

Typically, I quietly climb back up. I kept most of my health to myself besides major things that were hard to hide. I masked my symptoms with caffeine, marijuana and alcohol. Depression was always tucked away inside. I never slept and I resented my body.

This time, I didn’t climb back up. I accepted it. I embraced it. I shared my story and my truth so that others didn’t feel the need to suffer silently like I did. My career fell apart.

Tyler Durden: It’s only after we’ve lost everything that we’re free to do anything. -Fight Club

On the plus side, when my health deteriorated, I realized who was important. I realized I wasted precious time with the wrong people when I had amazing friends that were there all along. It reminded me about quality over quantity.

I have learned to change my perspective. I may not be the career fueled woman I once was but my passion has never skipped a beat. I remind myself how grateful I am to now live a genuine life, with no toxic friendships, no false relationships, nobody with a hidden agenda. My life is a challenge but it is real and so are my relationships.

When you find yourself in this position, it’s a chance to reinvent yourself. You reevaluate everything. You cut the toxins out and you ask yourself, what do you truly want? How can I touch lives and make a difference?

I may be grieving who I once was, my fair-weather friends, and my fast-paced career. However, I am excited to see how my new journey unfolds and where life will take me. I feel my purpose needed to be more meaningful. I was lost in the fun, excitement and the haze of fake friends and couldn’t see what I was meant to do. I was meant to change the world, to help others and to make a difference… no matter how small. Even if I just pave the way.

Unveiling Invisible Illnesses

If I Only Had a Heart

The #myedschallenge for today is “if you could rid yourself of one EDS symptom, what would it be?

Without a doubt, I would rid myself of heart issues. I will gladly take the pain, muscle aches and spasms, joint hypermobility, subluxations, migraines, gastrointestinal issues, brain fog and so on. I have always known my life with heart issues.

I remember playing on the softball team in 3rd grade, complaining of my heart racing. “Keep running, kid. That’s normal,” my coach said. It wasn’t until I was 15 when we realized my heart rate was hitting the 300s and I had SVT and WPW. I remember being in my 20s and dancing with my friends, periodically going to the bathroom stall to slow down my heart. I just wanted to be normal.

Between multiple surgeries, hospitalizations, ER visits and doctors appointments, these heart issues have robbed me of so much of my life. These heart issues affect me every day.

My heart valves leak and have hypertrophied, requiring an inevitable 2nd open heart surgery one day. I have already had 4 cardiac ablations and refuse to do a 5th as it would make me 100% pacemaker dependent. My aortic root is dilating, a common issue with EDS. While I worry about my heart rhythms, blood pressure, arrhythmias, and valves, I also have worry about the possibility of aortic dissection.

I put my hand on my heart, and though battery operated, I am still so grateful that it pumps. I am grateful that I am here to be a mother and a wife, to share my story, to raise awareness, advocate and educate. I am grateful to breathe in the warm Florida air, even while my heart races and my chest aches. But what I wouldn’t do for a healthy heart….

Healthy Food, Sweet Tooth

Oh, Honey!

Check out these delicious and clean-eating recipes without refined sugar.

*This article was also published in April 2019 issue of The Beachside Resident


Banana Affair
Peel one side of the banana off and make a cut going down the middle, like a hot dog bun. Stuff the banana with almond butter (peanut or cashew butter works too) and dairy-free chocolate chips. Top with coconut flakes and pop it in the oven just long enough to warm up and melt the chocolate, while toasting the coconut flakes. Top with cinnamon and drizzle with local honey to finish this mouth-watering melted banana from heaven. I tried a banana similar from the @Eatqual vegan food truck and ever since have been making my own versions.


Boujee Bread
Any baguette or sprouted grainy bread of your choice will work.  Cut it down the middle and add a small about of Earth Balance (dairy-free) butter. Next, top with fresh raspberries (blueberries, peaches, or jam will also work) and top with brie. Warm it up in the oven until the brie melts. Top with local honey, cracked pepper and fresh basil or sage. This is the perfect sweet and savory treat that will also impress a house guest. 
 
Smoothie Bowl
Blend ice with frozen berries, almond milk and acai. Make sure the consistency is thick, but I always fill the bowl and put it in the freezer to thicken it up more. When ready, use whatever you have on hand in your kitchen: top with fresh fruit, chia seeds, granola, coconut flakes, nuts, seeds, cinnamon and of course local honey. This is great to eat in the morning to start your day off but I also enjoy it in the evening instead of ice cream. 
Health, mental health

The Invisible Diaries Podcast and Show

I am so excited to announce the upcoming launch of a show with my dear friend Amber, called The Invisible Diaries! The show will be shedding light on invisible illnesses. We are going to interview guests as well.

If you are interested in being on our show, please emails us at theinvisiblediaries@gmail.com and introduce yourself.

Instagram and Facebook Daily Topics

  • Mental Health Monday – Mental health awareness, support and education
  • Teach Me Tuesday – Education, information and learning
  • Words of Wisdom Wednesday – Quotes and inspiration
  • Thankful Thursday – Focusing on the good and finding balance
  • Favorites Friday – Favorite things and product highlights

Stay tuned and follow us on social media for updates on our official launch!

mental health

30 Day Mental Health Challenge

Check off each day as you go. If you miss a day, go back to it and complete at the end.

Feel free to share any of your challenges and activities on Instagram with #30DayBlu

  • Day 1: Write a list of your goals for the month
  • Day 2: Put your headphones on and go on a 15 minute walk.
  • Day 3: Treat yourself! Whether it is a concert, hot bath, massage or ice cream… you deserve it.
  • Day 4: Write a letter to someone who hurt you and then burn it.
  • Day 5: No phone for the evening! Shut off your phone before dinner and don’t touch it till morning.
  • Day 6: Start a new book or continue reading the book that you haven’t finished yet.
  • Day 7: Compliment 3 complete strangers
  • Day 8: Plan a mini adventure for your next day off. Check out a nearby town. Go to a museum or garden, for example.
  • Day 9: Reach out to a person you have been out of touch with; ask them how they’ve been.
  • Day 10: Clean your closet and donate what you don’t use or wear anymore
  • Day 11: Try something new! Go to a yoga class or an art class.
  • Day 12: Look in the mirror and tell yourself 3 great things about yourself
  • Day 13: Cut something toxic out of your life. Examples: a bad habit, toxic relationship, sugar addiction.
  • Day 14: Health day! Smoothies, salads and clean eating. Focus on health and nutrition today.
  • Day 15: Spend 15 minutes stretching and focusing on breathing.
  • Day 16: Do something nice and unexpected for someone.
  • Day 17: Be present. Make eye contact all day, with each conversation you have. Even if it is the cashier at the grocery store. Be aware of your surroundings and listen.
  • Day 16: Get a jar and fill it with all the loose change you find throughout the day. Label it with your choice: vacation, anniversary, Christmas funds, new shoes, massage…
  • Day 17: No social media till noon! Check on your list of goals for the month or catch up on a day you missed.
  • Day 18: Learn something new. Spend 15 minutes reading or researching about an interesting topic.
  • Day 19: Art day! Create something: a drawing, poem, painting, or anything of your choice. Check Pinterest if you are drawing a blank.
  • Day 20: Think of something you have done that you regret or are ashamed of. Forgive yourself. You are human and we make mistakes and grow from them. Think about what you learned. Follow with a self-care activity.
  • Day 21: Send a card or letter to a good friend or family member.
  • Day 22: Clean your nightstand, wash your bedding and plan to go to bed early tonight. No tv or phone! Focus on breathing and visualize the ocean or mountains.
  • Day 23: Forgive someone who never apologized. Think about how you were hurt and let it go. You owe it to yourself, not them.
  • Day 24: Donate some items to the Humane Society, local food pantry or women’s shelter.
  • Day 25: Do something outside of your comfort zone.
  • Day 26: Make that doctors appointment you have been putting off… your annual check up, routine bloodwork or that follow up and never went to.
  • Day 27: Check on your strong friends. Ask them how they are doing, reach out and give them an opportunity to open up. Those who appear put together sometimes have silent battles.
  • Day 28: Clean your vehicle. If you don’t have a vehicle then clean your bathroom or office.
  • Day 29: Photo day! Take photos of throughout the day to show your perspective through your eyes, but in black and white. Get creative.
  • Day 30: Pay it forward
Health, Travel

Travel and Self-Care Tips for Staying Healthy

*Published in March 2019 issue of The Beachside Resident

Traveling is good for the soul and while it can be therapeutic and fun, it can also be exhausting. Packing for a trip can be stressful. We never want to forget anything but there is always something, right?! Making a list can help you stay organized.

I always suggest packing a small health kit incase you get sick. Being sick when away from home is horrible. The last thing you want to do at midnight when you spike a fever, is to run out to a store in an unfamiliar town. I always make sure to cover everything from fevers to an upset stomach. When you are traveling, you get exposed to a lot of germs. Bringing 1000mg vitamin C supplements will help boost your immune system. I take 2-3 with each meal to prevent getting sick.

Always bring a good book. Watching movies can drain your phone and sometimes it is a nice break from that addictive glowing device. I also pack snacks. Think about this: it is late at night and you get the munchies. Having granola bars, cup of soup, fruit or muffins, will be convenient and affordable so you aren’t stuck with jet lag insomnia cravings.

Packing tea is always helpful too. The plane and any restaurant or hotel will offer hot water but the tea options are not always great. Buying tea at a coffee shop gets expensive. Ginger tea is great for inflammation and digestion. Peppermint will sooth an upset stomach and both lavender and chamomile are relaxing. Herbal teas have many beneficial uses that can help keep you comfortable on your trip.

I always bring Wildling Apothecary CBD oil. It is amazing for insomnia, anxiety, pain, inflammation, relaxation, headaches, skin and digestive issues. Wildling Apothecary’s Energy Sprinkles are crucial for traveling too. When we travel, we tend to burn the candle at both ends. This alkalizing greens mix helps stabilize the mood, keep electrolytes up, reduce illness, improve detoxification and increase energy.

In case you get a headache or just want to freshen the stagnant airport air, rubbing peppermint essential oil on your temples will help. It also calms the mind, keeps the mosquitoes away, soothes sunburns and relieve IBS. Peppermint oil is also great with shower steam for respiratory relief.

Banana Bag Drink is a powder you mix with water and drink to stay hydrated. It is loaded with vitamins and will prevent dehydration.

So, before you pack all of your favorite shoes and far too many clothes, make sure you leave room for self care products that will assist in keeping your immune system in good shape and allow time to relax. Most people get sick after a trip and you don’t have to be most people with these travel hacks.