Health, Unveiling Invisible Illnesses

Unveiling Invisible Illnesses – Type 1 Diabetes

Frazier has been a diabetic warrior since the age of 12. She is a young, vibrant woman with a fun personality and doesn’t let the illness define her, yet advocates for others and is making the effort to help younger generations on how to cope and live their lives. I interviewed Frazier and around that time she was in the hospital. She rides her sense of humor as a strength to keep her chin up during tough times. Support is everything! It’s not easy and it can be scary but it is important to be happy and take care of yourself.

What is your invisible illness?

Type one diabetes

When and how were you diagnosed?

I was 12 years old. I went in for a double ear infection, got lab work done and I was diagnosed with type one diabetes.

What were your struggles and fear after diagnosis?

At first I didn’t fully grasp the full weight of my disease. Later, I realized how much work it was going to take. I was in denial for a very long time and I thought that ignoring it would make it go away.

Frazier is very involved with Florida Diabetes Camp. She was a camper from 2005-2010, then became a volunteer. She helps the kids learn how to manage diabetes and shows them that they can do anything that non diabetics can. She wears an insulin pump to help regulate her sugars on a daily basis. “I have to count the carbs that I eat, then give myself a dose of insulin to keep my sugar at a normal level. My blood sugar goal is between 80-130. It’s a balancing game that is super important. If I let it get of our control I can end up in the hospital with a DKA, diabetic ketoacidoais. Which is why I’m here now.” (hospital)

What advice do you have for anyone going through a new diagnosis?

Get a good support system. It is very important to have people in your corner. Also tell your friends and close people around you that you have this disease. One day they might save your life.

What are your goals and dreams in life?

I want to be a mom. I have always love kids, even to the point that I geared my education towards a career that includes children.

Three things you cannot live without:

Coffee, diabetes supplies, friends and family.

Favorite Quote:

“I have diabetes, diabetes does not have me.”

Health, Unveiling Invisible Illnesses

Unveiling Invisible Illnesses – Endometriosis

Laura Kay Halcom from Rockledge, Florida is 1 of 10 who struggle with endometriosis, a painful disorder in which the tissue that grows on the lining of your uterus spreads to other organs like the fallopian tubes and ovaries. With no way to exit the body like normal menstruation, the tissue becomes trapped and causes pain, scaring, adhesions and fertility problems.

Endometriosis is difficult to diagnose without an invasive procedure, a laparoscopy. Often times it will be misdiagnosed with IBS or deemed psychological. Symptoms can range based on severity but can cause nausea, low grade fevers, heavy bleeding, lower back pain, pelvic pain, painful intercourse, painful bowel movements and fatigue.

Treatment usually starts with birth control hormones to try to regulate your cycle but unfortunately, some women are very sensitive to the hormones and don’t always respond to that treatment. Another option is an endometrial ablation, but it is not always suggested if you plan to have children. A hysterectomy is a final option but there are studies that it still is no cure and it is a rough surgery. If your endometrial tissue grows onto other organs, removing the uterus is not going to help. There are studies that nutrition can play a big role. An anti-inflammatory diet can help minimize symptoms.

Avoiding gluten, red meat, sugar, caffeine and alcohol can help alleviate symptoms and inflammation. Having a well-balanced diet full of nutrients, antioxidants, fatty acids and iron rich foods is important. Turmeric is a natural anti-inflammatory compound that you can take as capsules or sprinkle on your food. Having plenty of rest, staying hydrated and support will be your best friend for this diagnosis.

Meet Laura

What is your invisible illness?

Endometriosis, Depression, Anxiety

When and how were you diagnosed?

Endo: June 2017 by laparoscopic surgery. It took 12 years and dozens of tests for me to be diagnosed. I have had anxiety & depression since I was 16.

What were your struggles and fear after diagnosis?

There is no known cause, and no cure. Now, the treatments of birth control and antidepressants are just making things worse. I also fear infertility.

What advice do you have for anyone going through a new diagnosis?

Be patient with yourself. Keep records of everything. Find your community of people struggling with what you are fighting. Talk about it. Educate yourself so that you can educate others.

What are your goals and dreams in life?

My goal is to finish my business degree. I want to be an educator and an entertainer. I dream of my own business, where I can express myself through art, music, and nature. I dream of adventure in far away places.

Three things you cannot live without: Sunshine, hugs, and my heating pad!

Favorite Quote:

“What would you attempt to do if you knew you could not fail?”

Endo Warrior Shirt

Health, Unveiling Invisible Illnesses

How To Be There For Someone With A Chronic Illness

Imagine you have two people who are not on the same page, let alone the same book. One struggles with chronic illness and the other is averagely healthy and maybe even deals with a common ailment here and there, but how can they relate when it comes to health? It may not come easy to some when they have never had their health jeopardized. It is important to build a bridge to have a connection with your family or friend.

Invisible Illnesses

Perhaps your friend or loved one has an invisible illness. This means that they look healthy on the outside but on the inside they struggle with an illness like diabetes, lupus, PTSD, POTS, Thyroid diseases, Cardiac and Neurological diseases, to name a few.

We all have our own battles.

It can be tough to look at someone who looks fully capable of living life the way you do but we are all different. Understand that just because you may be healthy and can juggle so many tasks, does not mean it comes easy for others.

It is important to recognize that with all things, there is a spectrum. With chronic illnesses, that spectrum can vary day to day. One morning, we may have so much energy that we can clean the house and go out to get lunch but the next morning we may be bedridden.

Personally, putting on makeup every day is my way of putting on war paint. I hide my dark circles from waking up every hour. I conceal the redness in my face or sometimes add blush to my pale skin. When I look well, I don’t get asked if I am sick or told I look tired. I feel normal and ready to take on the day.

Just because you friend or loved one looks put together and seems young and healthy, doesn’t mean she wasn’t up at 4am with severe back spasms and again at 5am feeling dehydrated and again at 6am in more pain and a numb arm until it is finally time to get up for the day. She probably got dizzy a few different times while her blood pressure dropped, causing nausea and tachycardia. Be grateful she answered the phone or showed up for lunch and she we be grateful for you.

The Spoon Theory

The Spoon Theory is a metaphor to explain the limited energy that someone with an invisible or chronic illness struggles with. Say you get 12 spoons each day and each task costs a spoon or two. Sometimes a shower can cost 2 spoons on a rough day. Going to work can cost a lot of spoons as well. Cleaning the kitchen? That will be 3 spoons! Sometimes if you push yourself too hard, it costs spoons from the next day which will leave you in bed with limited spoons.

We call people “Spoonies” who fit in to the Spoon Theory.

How to be there for a Spoonie:

  • Understanding – The fact that you have read this so far is already a huge deal for your Spoonie. Trying to understand what life is like for your friend or loved one shows a lot of compassion and empathy. This is your biggest step and the most important. For some, we are constantly judged, assumed we are lazy, told it is in our head, called a hypochondriac or just straight up dismissed. Certain medical conditions sometimes take up to a decade or longer to get diagnosed. Often times there are several misdiagnosis’s and even people get left in a grey area where no one knows what to do. We feel alone and lost.
  • Keep Your Ideals To Yourself – We appreciate your concerns, absolutely. I can vouch for myself that I have done plenty of research, am fully aware of my body and what is normal for me, have a strict diet with optimal nutrition and supplements, non drinker, non smoker and always staying positive as well as seeing a therapist. My health is a full time job. You can’t even pronounce what illnesses I have so please don’t try to cure me. Of course, we appreciate advice but keep it simple and keep it at that. Do not try to push your ideals on someone or tell them if they exercise more they will feel better or that they can meditate to a cure. All we want is a shoulder to cry on, a listening ear, positive vibes and understanding.
  • If You Are Sick, Stay Away! – Seriously, some of us have compromised immune systems and if you have a cold or flu and bring your germs to anyone, even a healthy person, it is just simply rude. If you bring your germs to someone who is already ill, it is cruel. We don’t fight infections and other illnesses very well and most of the time it makes our other issues worse and for some, it could mean a trip to the hospital.
  • Social Gatherings – There is a good chance we might not make it to your event or night out. I can assure you that we wish we were there but more often than not, our health makes us flakey friends. Please don’t stop inviting us! We will always try, even if the chances are slim. Also, please don’t get upset with us if we don’t make it. We would rather be out having fun with you than stuck in bed.
  • Know That We Are Fighting A Battle – If we seem a little off, let us be a little off. There are countless times when I was hanging out with someone while my vision blurred and I start seeing stars, getting light headed and heart palpitations but I push through because this is my normal life. Something that has always bothered me was when strangers, coworkers or peers say “Smile! It can’t be that bad!” Well, maybe I am struggling with an ocular migraine that day, low blood pressure or didn’t sleep well, so if I have a case of resting bitch face then let it be. I know it could always be worse but I am here, smile or not!
  • My Illness Does Not Define Me – I am a strong warrior. I love art, music, travel, culture, anything vintage, food, nature, giving back and being creative. I can be sensitive but I persevere and I keep my chin up. I have not given up and I won’t. I have bad days but I climb above it and stay positive, even it it is a full time job. I am not my illness. However, it is part of my life, whether big or small. It may affect me but it is not who I am.

Body and Beauty, Health, Unveiling Invisible Illnesses

Yoga Newbie

One of my many goals for the new year is to stretch more. I am in severe pain every single day and last year I did absolutely ZERO exercising. It is a challenge to do any workouts due to my heart condition but I hate the idea of getting weak. One of my amazing Wildling Apothecary homes is The Yogi Perogi in Melbourne, Florida. I thought, what a perfect way to support them too, while working on my goal to stretch and hopefully reduce the pain in my body.

As a yoga newbie, I felt that Amy Ustjanowski lead the class so seamlessly. I started with the Vinyasa Flow, which she recommended. I did avoid a pose or two since my pacemaker is in an odd location and causes pain still. There was no judgement and no feeling awkward with my lack of experience and knowledge. I felt fairly out of shape but any time I started to worry, she somehow was a step ahead of me telling us not to. I realized that yoga is also something that will strengthen your body but most importantly, remind you to breathe. As silly as it sounds, I never remember to breathe.

I definitely enjoyed the class and plan to try many more. Koah does a Rock n Flow class on Saturdays with live music! I think it is always very important to challenge yourself and to try something new. I also want to be more aware of breathing… inhaling and exhaling. Though it is autonomic and something that you just do, I realized that I don’t do it right. Letting go of the stress in your body and taking the time to rejuvenate is something that has never been a priority until now.

Body and Beauty, Unveiling Invisible Illnesses

Invisible Illnesses Unveiled – Plantar Fasciitis

Yvonne is a ray of sunshine and you wouldn’t dare look at her and think that she was suffering. She is struggling for answers and remedies while trying to piece together her life around a disability. Meet Yvonne!

Where are you from originality?

I am from Jacksonville, Florida and I was adopted at 3 months old.

What is your dream for you and your career?

The ability to get back up and fight through battles is what inspires me. Women who empower women and encourage one another and lift another up also inspires me.  My dream is to continue to help others feel wonderful about themselves and to offer the best quality organic products and airbrush tanning at it’s finest!

What is your favorite music?

My favorite music is county believe it or not lol…. I love “feel.good soul music ”
What inspires you?

What are three things you can’t live without?

I can not live without my daughter! She is the reason why for all that I do. I can not live without putting a smile on someone’s face on a daily basis. It feeds my soul to do good deeds!  I can not live without lipstick… I LOVVEEEE LIPSTICK and coffee!

Favorite quote:

There is only one happiness in this life. To love and be loved.

Tell me a little about your injury and daily battles:

My injury occurred several months ago.  I have a severe case of Plantar Fasciitis. I have been a dancer since I was three years old and that has become a passion of mine as it’s in my heart and in my veins! I have been teaching dance aerobics since I was out of high school. To be a dancer and to loose your feet and feel prisoner to them is the last thing I thought I would ever have to go through. I do not want to get out of bed and take the 1st steps as I know how painful they are. Throughout the day as I walk, it’s a struggle just to to stand. The only relief I get is if I sit, so I almost want to be in a wheelchair as hard as that is to say. Excruciating pain does something to you… I feel as if it has stripped my soul in my passion.  I get depressed very easily and cry a couple times a day. As much as I want to cut them off of my body,  I tell my feet I love them with every step I take no matter how much they hurt me and also how badly I want to remove them from my body. I pray that the feet I once knew come back to me soon as each day feels like an eternity when you are struggling to walk.

What is some advice you can give to anyone suffering?

My advice for anyone suffering is to breathe deep breaths and lean on your loved ones as much as possible. If they love you, they got you! Cry it out, and get back up again. I pray… A LOT! I try focus on the positive things that God has given me instead of dwelling in the darkness of this pain, even though at times it does get to me and I do break.

What helps with your issue?

My family helps me with my issue even though they don’t understand it. No one will understand if they’ve never experienced it, but it helps when you know you have people that truly care about you, that love you and want what’s best for you and your healing. There is truly nothing like support when you’re suffering. Pain this intense messes with you mentally as well.  Family is always there to hold you and help you get through it!!!! Also, the beach or sitting outdoor helps me clear my stresses.

Support Yvonne’s local business here:

Yvonne’s Organic Bronze