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Ehlers Danlos Syndrome Awareness Month – You Don’t Look Sick

May is apparently the month for everything awareness, so today I want to share a bit about Ehlers-Danlos Syndrome. In the medical field, doctors are often taught that when they hear hooves, it’s always a horse, never a zebra. But the zebras are standing up and demanding answers. We’ve been dismissed for far too long.… Continue reading Ehlers Danlos Syndrome Awareness Month – You Don’t Look Sick

Unveiling Invisible Illnesses

How To Be There For Someone With A Chronic Illness

Understanding invisible illness and how to show support

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Day 5 Postoperative Pacemaker Update 

The past couple of days have been rough. I have been having PACs, which feel like extra heart beats and bouts of Inappropriate Sinus Tachycardia. I have had these issues prior to the pacemaker that I just got on June 8th (2017) but was unable to take medication due to chronic Bradycardia, a slow heart rate.… Continue reading Day 5 Postoperative Pacemaker Update 

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What is normal? Living with Chronic Illness: My Journey to Finding Answers and Healing

Living with Chronic Illness: My Journey to Finding Answers and Healing Throughout my entire life, I’ve been living with chronic ailments. I vividly remember being in grade school, screaming in pain from stomach issues that no one seemed to understand. When I was seven years old, I’d run around playing, and my heart would race… Continue reading What is normal? Living with Chronic Illness: My Journey to Finding Answers and Healing