Health, Unveiling Invisible Illnesses

How To Be There For Someone With A Chronic Illness

Imagine you have two people who are not on the same page, let alone the same book. One struggles with chronic illness and the other is averagely healthy and maybe even deals with a common ailment here and there, but how can they relate when it comes to health? It may not come easy to some when they have never had their health jeopardized. It is important to build a bridge to have a connection with your family or friend.

Invisible Illnesses

Perhaps your friend or loved one has an invisible illness. This means that they look healthy on the outside but on the inside they struggle with an illness like diabetes, lupus, PTSD, POTS, Thyroid diseases, Cardiac and Neurological diseases, to name a few.

We all have our own battles.

It can be tough to look at someone who looks fully capable of living life the way you do but we are all different. Understand that just because you may be healthy and can juggle so many tasks, does not mean it comes easy for others.

It is important to recognize that with all things, there is a spectrum. With chronic illnesses, that spectrum can vary day to day. One morning, we may have so much energy that we can clean the house and go out to get lunch but the next morning we may be bedridden.

Personally, putting on makeup every day is my way of putting on war paint. I hide my dark circles from waking up every hour. I conceal the redness in my face or sometimes add blush to my pale skin. When I look well, I don’t get asked if I am sick or told I look tired. I feel normal and ready to take on the day.

Just because you friend or loved one looks put together and seems young and healthy, doesn’t mean she wasn’t up at 4am with severe back spasms and again at 5am feeling dehydrated and again at 6am in more pain and a numb arm until it is finally time to get up for the day. She probably got dizzy a few different times while her blood pressure dropped, causing nausea and tachycardia. Be grateful she answered the phone or showed up for lunch and she we be grateful for you.

The Spoon Theory

The Spoon Theory is a metaphor to explain the limited energy that someone with an invisible or chronic illness struggles with. Say you get 12 spoons each day and each task costs a spoon or two. Sometimes a shower can cost 2 spoons on a rough day. Going to work can cost a lot of spoons as well. Cleaning the kitchen? That will be 3 spoons! Sometimes if you push yourself too hard, it costs spoons from the next day which will leave you in bed with limited spoons.

We call people “Spoonies” who fit in to the Spoon Theory.

How to be there for a Spoonie:

  • Understanding – The fact that you have read this so far is already a huge deal for your Spoonie. Trying to understand what life is like for your friend or loved one shows a lot of compassion and empathy. This is your biggest step and the most important. For some, we are constantly judged, assumed we are lazy, told it is in our head, called a hypochondriac or just straight up dismissed. Certain medical conditions sometimes take up to a decade or longer to get diagnosed. Often times there are several misdiagnosis’s and even people get left in a grey area where no one knows what to do. We feel alone and lost.
  • Keep Your Ideals To Yourself – We appreciate your concerns, absolutely. I can vouch for myself that I have done plenty of research, am fully aware of my body and what is normal for me, have a strict diet with optimal nutrition and supplements, non drinker, non smoker and always staying positive as well as seeing a therapist. My health is a full time job. You can’t even pronounce what illnesses I have so please don’t try to cure me. Of course, we appreciate advice but keep it simple and keep it at that. Do not try to push your ideals on someone or tell them if they exercise more they will feel better or that they can meditate to a cure. All we want is a shoulder to cry on, a listening ear, positive vibes and understanding.
  • If You Are Sick, Stay Away! – Seriously, some of us have compromised immune systems and if you have a cold or flu and bring your germs to anyone, even a healthy person, it is just simply rude. If you bring your germs to someone who is already ill, it is cruel. We don’t fight infections and other illnesses very well and most of the time it makes our other issues worse and for some, it could mean a trip to the hospital.
  • Social Gatherings – There is a good chance we might not make it to your event or night out. I can assure you that we wish we were there but more often than not, our health makes us flakey friends. Please don’t stop inviting us! We will always try, even if the chances are slim. Also, please don’t get upset with us if we don’t make it. We would rather be out having fun with you than stuck in bed.
  • Know That We Are Fighting A Battle – If we seem a little off, let us be a little off. There are countless times when I was hanging out with someone while my vision blurred and I start seeing stars, getting light headed and heart palpitations but I push through because this is my normal life. Something that has always bothered me was when strangers, coworkers or peers say “Smile! It can’t be that bad!” Well, maybe I am struggling with an ocular migraine that day, low blood pressure or didn’t sleep well, so if I have a case of resting bitch face then let it be. I know it could always be worse but I am here, smile or not!
  • My Illness Does Not Define Me – I am a strong warrior. I love art, music, travel, culture, anything vintage, food, nature, giving back and being creative. I can be sensitive but I persevere and I keep my chin up. I have not given up and I won’t. I have bad days but I climb above it and stay positive, even it it is a full time job. I am not my illness. However, it is part of my life, whether big or small. It may affect me but it is not who I am.

Health

CBD Oil: Who, When, Where, Why, How?

Who?

Anyone can try CBD oil. Even kids and pets! CBD oil is safe and has been used medicinally for decades. CBD provides the medical benefits of the marijuana plant without the psychoactive effects and high produced by THC. 

Here is an example of a case study of a young girl with PTSD from sexual abuse: Pediatric Anxiety And Insomnia

CBD can be used for PTSD, insomnia, anxiety, menstrual pain, migraines, nausea, inflammation, IBS, Chron’s, autoimmune disease, arthritis, fibromyalgia, and much more. It is my go to for all of my ailments. 

What?

Cannabidiol, also known as CBD,  is a cannabinoid in cannabis. CBD makes up 40% of the plant extract. It is the second most medically beneficial cannabinoid, after THC. CBD can actually counteract the psychoactive effects of THC. 

When?

What I love about CBD is that I feel like I am in control of my symptoms instead of my symptoms controlling me. Most medication are taken every 6-8 hours, have side effects, can be addictive, cause withdrawals or long term effects such as damage to your liver. With CBD I can take it whenever and as needed. For example, the other day was very rough for me. I had a splitting headache, intense nausea, felt like I had just fallen from a three story building and increased heart rate. I felt aweful. I had doses every few hours or so and made it theough the day. Some doses even back to back. You could NEVER do that with pain medication or most medications. Then, I have days that are not so bad and might just skip doses all day and have one dose in the evening. 

Where?

CBD is legal in all 50 states as long as it meets the requirement of containing no more than 0.3% THC.  

Follow Blu Dream Health Collective on Facebook for more information or subscribe to this blog for updates and how to purchase CBD oil. 

Why?

There is a High Times article on 10 Little-Known Uses For CBD states that CBD can curb nicotine addiction and also help with acne. CBD is a huge anti inflammatory! Washington Post has plenty of doctors stating the anti-cancer properties and powerful positive effects for epileptic patients. Cannabis can suppress a hyperactive immune system and lower inflammation, which are two important concerns in Autoimmune Diseases.

CBD is safer than aspirin. There are overwhelming studies that prove just that. Medical cannabis has never killed a single patient. 

How?

CBD can be vaped, ingested transdermally, sublingual or in edibles. There are capsules, creams, salves and so on. I strongly suggest that you do your research and get the best product available. I only use Fountain of Health CBD because it is Colorado grown, non-GMO, vegetarian, alcohol-free and coconut oil base. Many companies do not even list their ingredients. This is also the highest strength for the best price available on the market. I carry the 1/2oz size in my shop and online store [link available soon] and it is 1,000mgs. You only need 2-5 small droplets under your tongue (sublingual) and it takes effect within minutes.