Astrid is my 12 year old daughter and she also has Ehlers Danlos Syndrome and POTS. She is incredibly strong, talented and beautiful. Astrid is very athletic and she keeps her Postural Orthostatic Tachycardia Syndrome (POTS) under control by staying hydrated. Check out our most recent photo shoot in downtown Eau Gallie Art District in… Continue reading Astrid – Ballet Photos in Downtown Melbourne, FL
Category: Unveiling Invisible Illnesses
Fight Like a MTHFR!
MTHFR mutation and depression
Invisible Illness – Dysautonomia Awareness at Local Florida Emergency Rooms
It’s time to spread awareness to our local hospitals, ERs and doctors offices.
Pacemaker Check
Despite not having insurance at the moment, I attended my pacemaker check (priorities) and found that 70% of the time, I am paced, and I have about 7.5 years left on my pacemaker. The bad news is that on July 1st, around 4 p.m., I went into v tach, which can sometimes lead to cardiac… Continue reading Pacemaker Check
It’s Okay to Feel
Yes, stay positive! BUT don’t stop having feelings. We have become such an image of perfection and only showcase the positive side of our story. This makes us feel like we can’t ever be raw or have feelings. It’s okay to be frustrated, cry or feel angry. Just don’t live there. It’s okay to feel!… Continue reading It’s Okay to Feel
Health PTSD – Warrior Status
Dealing with PTSD from health issues
I Believe You
Misdiagnosis and blatant dismissal is common and can break people down over time.
Invisible Illnesses Unveiled – Eosinophillic Esophagitis
Life with EOE
Top Ways to Get Out of a Funk
How to keep your mental health in balance
Once a Day – Engage Challenge
Do we ever really stop and truly engage with someone? Do we look into their eyes and acknowledge their existence, or are we too preoccupied with our own thoughts, the distractions of the world, or what we want to say next? In a society that’s constantly on the go, we often overlook the people right… Continue reading Once a Day – Engage Challenge